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Welcome to Being Rare

Reine Hodroj Image

Welcome to "Being Rare," a space curated by Reine Hodroj, where we embark on a journey through the world of autoinflammatory diseases, with a special focus on Behçet's disease. I am Reine, and I've personally experienced the challenges and triumphs that come with navigating life with Behçet's.

As someone intimately acquainted with Behçet's, I aim to create a community where individuals, caregivers, and anyone seeking information can find a source of empathy, understanding, and valuable insights. "Being Rare" is not just a blog; it's a platform for education, awareness, and empowerment.

Join me as we explore the intricacies of Behçet's disease, share personal stories, and discuss the latest developments in research and treatment. This blog is not only about my journey but also about creating a collective voice for those affected by auto inflammatory diseases.

Explore Being Rare

Community Support

Let's break the silence, challenge misconceptions, and build a supportive community that fosters knowledge and compassion. Together, we can make a difference in the lives of those living with Behçet's and other rare conditions.

Research and Information

We are dedicated to staying up-to-date with the latest research and developments in the field of auto-inflammatory diseases. We strive to provide accurate and reliable information to our readers.

Awareness Campaigns

We believe that raising awareness is key to finding a cure for auto-inflammatory diseases. We are committed to sharing different awareness campaigns and events to promote education and understanding of these conditions.

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Thank You

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